As part of M.E. Awareness Week last week, Action for M.E. has launched a new anonymous survey on living with M.E. in Scotland.
Myalgic encephalomyelitis (M.E.) (also known as chronic fatigue syndrome, and often abbreviated to CFS/ME) is a medical condition characterised by extreme fatigue and other persistent symptoms which limit people’s ability to carry out daily activities.
This new survey is part of Action for M.E.’s 5 year follow up to their 2014 survey, “M.E. Time to Deliver”, and looks at health, welfare, employment and education for children and adults with M.E.
As in 2014, this survey will be used to inform Action for M.E.’s future policy and campaigning work, along with the next 5 year strategy, with results due to be published in the autumn.
By sharing experience on topics including symptom management approaches, the impact of M.E. on relationships, and access to the right sort of support, responders can help Action for M.E. campaign more effectively for improved services and support from professionals, planners and policy-makers.
Please note, this is a long survey, with around 50 questions. Those with M.E. and other chronic fatigue conditions are asked to pace themselves and take their time when submitting their responses.
Action for M.E. advise that if you would like to ask a carer, friend or family member to assist you in completing the survey, to do so. Additionally, as any information shared is valuable, if you are unable to finish the survey, or would only like to fill in certain sections, this is not a problem.
There is a progress bar at the top of each page, showing how many pages have been completed. If you would like to take a break at any point, SurveyMonkey will remember your place when you return.
The deadline for responses is Friday 2nd August.
To submit your response, or for further information, please visit the SurveyMonkey page.